Development and initial evaluation of an online decision support tool for families of patients with critical illness: A multicenter pilot study

Highlights • Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision-making • MyICUGuide is a family-facing intervention to empower and capacitate family members during shared decision-making • Family members of non-capacitated patients reviewed My...

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Published in	Journal of critical care Vol. 39; pp. 18 - 24
Main Authors	Van Scoy, Lauren Jodi, MD, Chiarolanzio, Patrick J., BA, Kim, Cynthia, MD, Heyland, Daren K., MD
Format	Journal Article
Language	English
Published	United States Elsevier Inc 01.06.2017 Elsevier Limited
Subjects	Clinical decision making Clinical trials Communication Critical Care Decision making Decision support systems Decision support techniques Empowerment End-of-life care Families & family life Holistic medicine Intensive care Intervention Palliative care Patient-centered care Patients Stress Terminal care United States > US critical care terminal care patient-centered care decision support techniques end of life care decision making Critical care Terminal care Decision support techniques End-of-life care Decision making Patient-centered care
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Abstract	Highlights • Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision-making • MyICUGuide is a family-facing intervention to empower and capacitate family members during shared decision-making • Family members of non-capacitated patients reviewed MyICUGuide • 100% of participants rated MyICUGuide positively and 93% would recommend MyICUGuide to others • Family-centered decision-support tools are well accepted by family members of critically ill patients • Voices of family members of ICU patients are underrepresented in the literature
AbstractList	Highlights • Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision-making • MyICUGuide is a family-facing intervention to empower and capacitate family members during shared decision-making • Family members of non-capacitated patients reviewed MyICUGuide • 100% of participants rated MyICUGuide positively and 93% would recommend MyICUGuide to others • Family-centered decision-support tools are well accepted by family members of critically ill patients • Voices of family members of ICU patients are underrepresented in the literature •Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision making.•MyICUGuide is a family-facing intervention to empower and capacitate family members during shared decision making.•Family members of noncapacitated patients reviewed MyICUGuide.•100% of participants rated MyICUGuide positively, and 93% would recommend MyICUGuide to others.•Family-centered decision-support tools are well accepted by family members of critically ill patients.•Voices of family members of ICU patients are underrepresented in the literature. [...]our prior hospital-based studies have documented severe deficiencies in the communication and decision-making process from the families' perspective [13-15]. [...]when clinicians partner with families, patients experience better health outcomes as well as the involved family members [23-27]. [...]we developed a decision-support intervention, called MyICUGuide (www.myicuguide.com), that addresses these deficiencies and provides patient- and family-centered information about the ICU environment in general, tips for coping with the stress of having a family member in the ICU, and principles of shared decision making in addition to eliciting information from the family members about themselves and the patient via exercises and values clarification tools.
Author	Kim, Cynthia, MD Chiarolanzio, Patrick J., BA Van Scoy, Lauren Jodi, MD Heyland, Daren K., MD
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CitedBy_id	crossref_primary_10_1016_j_jcrc_2019_01_029 crossref_primary_10_1016_j_jcrc_2021_08_001 crossref_primary_10_1513_AnnalsATS_202006_585OC crossref_primary_10_1111_jocn_16752 crossref_primary_10_1002_14651858_CD001431_pub6 crossref_primary_10_1212_WNL_0000000000009406 crossref_primary_10_3390_healthcare8030218 crossref_primary_10_1016_j_aucc_2019_12_001 crossref_primary_10_1177_1049909119892596 crossref_primary_10_1007_s11940_023_00765_4 crossref_primary_10_2196_15578
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Snippet	Highlights • Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision-making • MyICUGuide is a family-facing... •Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision making.•MyICUGuide is a family-facing intervention... [...]our prior hospital-based studies have documented severe deficiencies in the communication and decision-making process from the families' perspective...
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SubjectTerms	Clinical decision making Clinical trials Communication Critical Care Decision making Decision support systems Decision support techniques Empowerment End-of-life care Families & family life Holistic medicine Intensive care Intervention Palliative care Patient-centered care Patients Stress Terminal care
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Title	Development and initial evaluation of an online decision support tool for families of patients with critical illness: A multicenter pilot study
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