Development and initial evaluation of an online decision support tool for families of patients with critical illness: A multicenter pilot study

• Published in: Journal of critical care Vol. 39; pp. 18 - 24
• Main Authors: Van Scoy, Lauren Jodi, MD, Chiarolanzio, Patrick J., BA, Kim, Cynthia, MD, Heyland, Daren K., MD
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.06.2017; Elsevier Limited
• Subjects: Clinical decision making; Clinical trials; Communication; Critical Care; Decision making; Decision support systems; Decision support techniques; Empowerment; End-of-life care; Families & family life; Holistic medicine; Intensive care; Intervention; Palliative care; Patient-centered care; Patients; Stress; Terminal care; United States > US; critical care; terminal care; patient-centered care; decision support techniques; end of life care; decision making; Critical care; Terminal care; Decision support techniques; End-of-life care; Decision making; Patient-centered care
• ISSN: 0883-9441; 1557-8615
• DOI: 10.1016/j.jcrc.2016.12.022

Highlights • Families of intensive care unit (ICU) patients perceive severe deficiencies in communication about decision-making • MyICUGuide is a family-facing intervention to empower and capacitate family members during shared decision-making • Family members of non-capacitated patients reviewed MyICUGuide • 100% of participants rated MyICUGuide positively and 93% would recommend MyICUGuide to others • Family-centered decision-support tools are well accepted by family members of critically ill patients • Voices of family members of ICU patients are underrepresented in the literature