Impact of COVID‐19 on the burden of care of families of people with intellectual and developmental disabilities

• Published in: Journal of Applied Research in Intellectual Disabilities Vol. 35; no. 2; pp. 577 - 586
• Main Authors: Navas, Patricia, Verdugo, Miguel Ángel, Martínez, Sergio, Amor, Antonio M., Crespo, Manuela, Deliu, Madalin M.
• Format: Journal Article Web Resource
• Language: English
• Published: Oxford, UK Blackwell Publishing Ltd 01.03.2022; Wiley; John Wiley & Sons, Inc; Wiley Subscription Services, Inc
• Subjects: Access to Health Care; Child; Communicable Disease Control; COVID-19; Developmental Disabilities; Disability; emotional wellbeing; families; Families & family life; Family Role; Foreign Countries; Humans; intellectual and developmental disabilities; Intellectual disabilities; Intellectual Disability; Middle Aged; Pandemics; Quality of life; SARS-CoV-2; stress; Stress Variables; Spain; COVID-19; stress; intellectual and developmental disabilities; emotional wellbeing; families
• ISSN: 1360-2322; 1468-3148
• DOI: 10.1111/jar.12969

Aim This study analysed the impact that COVID‐19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method Data on 323 family members (M = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing difficulties experienced and service provision during lockdown. Results Many families (66.3%) have seen their level of stress increased during lockdown because of, among other reasons, a greater burden of care. Difficulties were associated with the closure and changes in disability‐related services. Families of people with extensive support needs have generally experienced greater difficulties. Conclusion Support services should have been considered essential services during lockdown. The failure to receive support has resulted in excessive burden on families, who had to assume a multitude of roles to support their family member with intellectual and developmental disability.