The Influence of Online Health Information Seeking Before a Consultation on Anxiety, Satisfaction, and Information Recall, Mediated by Patient Participation: Field Study

• Published in: Journal of medical Internet research Vol. 23; no. 7; p. e23670
• Main Authors: de Looper, Melanie, van Weert, Julia C M, Schouten, Barbara C, Bolle, Sifra, Belgers, Eric H J, Eddes, Eric H, Smets, Ellen M A
• Format: Journal Article
• Language: English
• Published: Toronto Gunther Eysenbach MD MPH, Associate Professor 05.07.2021; JMIR Publications
• Subjects: Anxiety; Cancer; Clinical outcomes; Colorectal cancer; Consumer health information; Coping style; Demographics; Empowerment; Frailty; Gender; Health education; Health information; Health literacy; Hospitals; Hypotheses; Influence; Information seeking behavior; Knowledge; Medical personnel; Older people; Original Paper; Participation; Patient participation; Patients; Personal characteristics; Psychological aspects; Psychosocial factors; Recall; Surgery
• ISSN: 1438-8871; 1439-4456; 1438-8871
• DOI: 10.2196/23670

Background Today, many cancer patients engage in online health information seeking (OHIS). However, little is known about how patients differ in their OHIS levels. In addition, OHIS might influence patient participation during a consultation with a physician, which might mediate the effects on patient outcomes. Objective The aim of this study is twofold: first, to provide insight into which personal characteristics and psychosocial factors affect patients’ OHIS levels and, second, to test the hypothesis that the effects of OHIS on patient outcomes are mediated by patient participation during the consultation. Methods Patient participation was operationalized in terms of patients’ absolute word count; the relative contribution of the patient, compared with the health care provider; and the number of questions and assertions expressed during the consultation. The patient outcomes measured were anxiety after the consultation, satisfaction with the consultation, and information recall. Participants in this study were patients recently diagnosed with colorectal cancer recruited from 6 hospitals in the Netherlands (n=90). Data were collected using questionnaires and audio-recorded consultations of patients with health care providers before their surgery. Results The results showed that younger patients, higher educated patients, patients with a monitoring coping style, and patients who experienced more cancer-related stress engaged more in OHIS. In turn, OHIS was related to patient participation in terms of the patient’s absolute word count but not to the relative contribution to the consultation or expressing questions and assertions. We did not find a relation between OHIS and anxiety and OHIS and recall mediated by patient participation. However, we found that patients’ absolute word count significantly mediated the positive association between OHIS and patients’ satisfaction with the consultation. Conclusions Results indicate positive implications of OHIS for patients’ care experience and, therefore, the importance of helping patients engage in OHIS. However, the results also suggest that OHIS is only successful in increasing a single aspect of patient participation, which might explain the absence of relations with anxiety and recall. The results suggest that more beneficial effects on patient outcomes may be achieved when health care providers support patients in OHIS.