A Health-Related Quality of Life Measure for Older Adolescents With Asthma: Child Health Survey for Asthma-T (Teen Version)

• Published in: Journal of pediatric health care Vol. 29; no. 5; pp. 402 - 412
• Main Authors: O'Laughlen, Mary C., PhD, RN, FNP-BC, FAAAAI, Hollen, Patricia J., PhD, RN, FAAN, Rance, Karen, DNP, RN, CPNP, AE-C, Rovnyak, Virginia, PhD, Hinton, Ivora, PhD, Hellems, Martha A., MD, Radecki, Linda, MS
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.09.2015
• Subjects: Adolescent; Adolescent Behavior - psychology; adolescent substance use; Advanced Practice Nursing; Asthma; Asthma - epidemiology; Asthma - physiopathology; Asthma - psychology; Feasibility Studies; Female; Follow-Up Studies; Health Knowledge, Attitudes, Practice; health-related quality of life; Hospitals, University; Humans; Male; Nursing; Parents - psychology; Pediatrics; Psychometrics; Quality of Life - psychology; Reproducibility of Results; Self Care - psychology; Severity of Illness Index; Substance-Related Disorders - complications; Substance-Related Disorders - epidemiology; Substance-Related Disorders - psychology; United States - epidemiology; United States; health-related quality of life; adolescent substance use; Asthma
• ISSN: 0891-5245; 1532-656X
• DOI: 10.1016/j.pedhc.2015.01.003

Abstract Background Although adolescent substance use can have direct effects on asthma symptoms and interact with medications used to treat asthma, no validated health-related quality of life (HRQL) instrument exists for adolescents 17 to 19 years of age with asthma. Purpose The American Academy of Pediatric's HRQL instrument, the Child Health Survey for Asthma (CHSA)–Child version, was modified with a substance use subscale to address outcomes specific to adolescents ages 17 to 19 years with asthma. Methods Two cohorts ( N  = 70) were recruited for instrument testing at pediatric primary care practices and two university clinics. A small methodological study with 24 adolescents was conducted to obtain initial support of the psychometric properties for the CHSA-Teen version at baseline, day 14, and day 16. A follow-up study included 46 teens to provide further support. Results The psychometric properties of the CHSA-Teen version were good and comparable with the CHSA-Child version for feasibility, reliability, and validity. Conclusions Health care providers need to be aware of each adolescent's substance use to personalize counseling related to asthma medications.