Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24

• Published in: Acta dermato-venereologica Vol. 101; no. 8; p. adv00529
• Main Authors: Marron, S, Gomez-Barrera, M, Aragones, L, Goni-Navarro, A, Vilarrasa, E, Diaz-Diaz, R, Aranibar, F, Campos-Rodenas, R, Barrio, V, Gilaberte-Calzada, Y, Gracia-Cazaña, T, Morales-Callaghan, A, Ros-Abarca, S, Madrid-Alvarez, M, Puig, L
• Format: Journal Article
• Language: English
• Published: Society for Publication of Acta Dermato-Venereologica 01.08.2021; Medical Journals Sweden
• Subjects: Clinical Report; hidradenitis suppurativa; patient-reported outcome measure; psychometrics; quality of life; validation
• ISSN: 1651-2057; 0001-5555; 1651-2057
• DOI: 10.2340/00015555-3905

To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectives of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.