Consensus for criteria of running a pediatric inflammatory bowel disease center using a modified Delphi approach

• Published in: World journal of pediatrics : WJP Vol. 19; no. 10; pp. 939 - 948
• Main Authors: Luo, You-You, Wu, Kai-Chun, Gong, Si-Tang, Huang, Ying, Yang, Hong, Tang, Qing-Ya, Leung, Ying-kit, Wu, Jie, Geng, Lan-Lan, Zhou, Wei, Sun, Mei, Wan, Chao-Min, Li, Zai-Ling, Fang, Ying, Li, Xiao-Qin, Li, Mei, Wang, Zhao-Xia, Xiao, Yuan, Zhong, Xue-Mei, Chen, Xiao-Fei, Chen, Jie
• Format: Journal Article
• Language: English
• Published: Singapore Springer Nature Singapore 01.10.2023; Department of Gastroenterology,Children's Hospital,Zhejiang University School of Medicine,Hangzhou 310052,China; National Clinical Research Center for Child Health,Hangzhou 310051,China%Department of Gastroenterology,Xijing Hospital,Fourth Military Medical University,Xi'an 710032,China%Department of Gastroenterology,Guangzhou Women and Children's Medical Center of Guangzhou Medical University,Guangzhou 510623,China%Department of Gastroenterology,Children's Hospital of Fudan University,Shanghai 201102,China%Department of Gastroenterology,Peking Union Medical College Hospital,Peking Union Medical College & Chinese Academy of Medical Science,Beijing 100730,China%Department of Clinical Nutrition,Xinhua Hospital School of Medicine,Shanghai Jiao Tong University,Shanghai 200092,China%Department of Pediatric Gastroenterology,The First Hospital of Jilin University,Jilin 130061,China%Department of Gastroenterology,Beijing Children's Hospital,Capital Medical University,Beijing 100045,China%Department of General Surgery,Sir Run Run Shaw Hospital,College of Medicine,Zhejiang University,Hangzhou 310016,China%Department of Gastroenterology,Shengjing Hospital of China Medical University,Shenyang 110004,China%Department of Pediatrics,West China Second Hospital,West China Women's and Children's Hospital,Chengdu 610041,China%Department of Pediatrics,Peking University Third Hospital,Beijing 100191,China%Department of Gastroenterology,Xi'an Children's Hospital,Xi'an 710003,China%Department of Gastroenterology,Children's Hospital of Zhengzhou University,Zhengzhou 450053,China%Department of Gastroenterology,Children's Hospital of Nanjing Medical University,Nanjing 210008,China%Department of Gastroenterology,Shenzhen Children's Hospital,Shenzhen 518034,China%Department of Pediatrics,Ruijing Hospital,School of Medicine,Shanghai Jiao Tong University,Shanghai 350025,China%Department of Gastroenterology,Children's Hospital,Capital Institute of Pediatrics,Beijing 100020,China
• Subjects: Child; China; Consensus; Critical Care Medicine; Humans; Imaging; Inflammatory Bowel Diseases - diagnosis; Inflammatory Bowel Diseases - therapy; Intensive; Maternal and Child Health; Medicine; Medicine & Public Health; Original; Original Article; Pediatric Surgery; Pediatrics; Radiology; Surgery; China; Quality indicators; Pediatric inflammatory bowel disease; Crohn’s disease; Ulcerative colitis; Crohn's disease
• ISSN: 1708-8569; 1867-0687
• DOI: 10.1007/s12519-023-00691-0

Background Good quality of care for inflammatory bowel disease (IBD) depends on high-standard management and facility in the IBD center. Yet, there are no clear measures or criteria for evaluating pediatric IBD (PIBD) center in China. The aim of this study was to develop a comprehensive set of quality indicators (QIs) for evaluating PIBD center in China. Methods A modified Delphi consensus-based approach was used to identify a set of QIs of structure, process, and outcomes for defining the criteria. The process included an exhaustive search using complementary approaches to identify potential QIs, and two web-based voting rounds to select the QIs defining the criteria for PIBD center. Results A total of 101 QIs (35 structures, 48 processes and 18 outcomes) were included in this consensus. Structure QIs focused on the composition of multidisciplinary team, facilities and services that PIBD center should provide. Process QIs highlight core requirements in diagnosing, evaluating, treating PIBD, and disease follow-up. Outcome QIs mainly included criteria evaluating effectiveness of various interventions in PIBD centers. Conclusion The present Delphi consensus developed a set of main QIs that may be useful for managing a PIBD center. -ZGREExbZZNYrtdkZM8DcG Video Abstract