Hospice palliative care volunteers: a Unique Care Link

In this research, we endeavoured to gain a clearer understanding of what impact hospice palliative care (HPC) volunteers have on family caregivers and the underlying factors that contribute to this. We conducted ten face-to-face interviews with bereaved women who had previously provided care for the...

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Bibliographic Details
Published inJournal of palliative care Vol. 24; no. 2; pp. 85 - 93
Main Authors Weeks, Lori E, Macquarrie, Colleen, Bryanton, Olive
Format Journal Article
LanguageEnglish
Published United States SAGE PUBLICATIONS, INC 01.06.2008
Subjects
Adaptation, Psychological
Aged
Aged, 80 and over
Bereavement
Caregivers - psychology
Consumer Behavior
Female
Focus Groups
Hospice care
Hospices - manpower
Humans
Middle Aged
Palliative care
Prince Edward Island
Role
Social Support
Studies
Task Performance and Analysis
Volunteers
Prince Edward Island
Canada
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Summary:In this research, we endeavoured to gain a clearer understanding of what impact hospice palliative care (HPC) volunteers have on family caregivers and the underlying factors that contribute to this. We conducted ten face-to-face interviews with bereaved women who had previously provided care for their spouses and who used HPC volunteers. We checked our interpretation through a feedback focus group. Using a methodological hermeneutic approach, we came to understand the unique position HPC volunteers occupy within the formal health care system. Our constitutive organizing theme was manifest throughout the women's stories in seven thematic areas that explicate the dimensions of the overarching theme: the Unique Care Link. We identified seven themes that exemplify specific ways in which HPC volunteers have a positive impact on the lives of spousal caregivers. This knowledge can be incorporated into the further development of training and support programs for HPC volunteers, and to increase the quality of volunteer HPC services provided to family members.
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ISSN:0825-8597
2369-5293
DOI:10.1177/082585970802400204