Validation of the National Institutes of Health Patient-Reported Outcomes Measurement Information System Survey as a Quality-of-Life Instrument for Patients with Malignant Brain Tumors and Their Caregivers

• Published in: The Nursing clinics of North America Vol. 50; no. 4; p. 679
• Main Authors: Romero, Melissa M, Flood, Lisa Sue, Gasiewicz, Nanci K, Rovin, Richard, Conklin, Samantha
• Format: Journal Article
• Language: English
• Published: United States 01.12.2015
• Subjects: Adult; Aged; Astrocytoma - nursing; Astrocytoma - pathology; Astrocytoma - psychology; Brain Neoplasms - nursing; Brain Neoplasms - pathology; Brain Neoplasms - psychology; Caregivers - psychology; Female; Glioblastoma - nursing; Glioblastoma - pathology; Glioblastoma - psychology; Humans; Information Systems; Male; Middle Aged; National Institutes of Health (U.S.); Neoplasm Metastasis; Nursing Process; Pilot Projects; Quality of Life; Reproducibility of Results; Surveys and Questionnaires; United States; United States; Pilot study; Malignant brain tumor; Caregiver; Quality of life; iPod touch device
• ISSN: 1558-1357
• DOI: 10.1016/j.cnur.2015.07.009

At present there is a lack of well-validated surveys used to measure quality of life in patients with malignant brain tumors and their caregivers. The main objective of this pilot study was to validate the National Institutes of Health Patient-Reported Outcomes Measurement Information System (NIH PROMIS) survey for use as a quality-of-life measure in this population. This article presents the rationale for using the NIH PROMIS instrument as a quality-of-life measure for patients with malignant brain tumors and their caregivers.