More than the sum of its parts—A constructivist grounded-theory study on specialist palliative care during crises like the COVID pandemic

• Published in: Palliative medicine Vol. 38; no. 3; pp. 331 - 342
• Main Authors: Wikert, Julia, Bausewein, Claudia, Hodiamont, Farina
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01.03.2024; Sage Publications Ltd
• Subjects: Conceptual knowledge; Connectedness; COVID-19; Crises; Decision making; Delivery of Health Care; Grounded Theory; Health care industry; Humans; Innovations; Interviews; Medical personnel; Original; Palliative care; Palliative Care - methods; Pandemics; Qualitative Research; Responsiveness; Specialized services; Teams; Uncertainty; COVID-19; complexity; crisis; grounded theory; Palliative care; qualitative research; pandemic; specialist palliative care
• ISSN: 0269-2163; 1477-030X
• DOI: 10.1177/02692163231222771

Background: The COVID pandemic is an example of a crisis challenging healthcare systems worldwide. The impact of the pandemic on providing high-quality palliative care calls for a deeper understanding of specialist services during crises. This is essential in preparation for further crises. Aim: To develop a conceptual understanding of the impact of the pandemic on specialist palliative care as an example for arising future crises. Design: Qualitative interview study across Germany, following a constructivist grounded theory methodology. Setting/participants: Eleven semi-structured interviews with experts with overarching knowledge of structures and processes in specialist palliative care between 05–07/2020 and between 02–06/2021, 23 semi-structured interviews with healthcare professionals working in a specialist palliative care setting. Results: The complex system of palliative care provision during crises has properties that cannot be understood as separated parts of the care process. The pandemic led to unique structural and processual challenges characterized by interconnectedness, uncertainty, dynamic, underlying dilemmas, and unclear long-term goal. In response to the pandemic, teams experienced different phases, which enhanced adaption, innovation, and progress within complex care situations. Creative strategy approaches and dynamic responsiveness facilitated innovative development and could lead to long-lasting improvement within services. Availability of information, transparent communication, comprehensible instructions, participation in decision-making, and search for solutions contributed to teams’ proactive development throughout the pandemic. Conclusion: Addressing the complex problems in specialist palliative care caused by crises requires system thinking and a learning mindset. This can facilitate teams to overcome the crisis and move forward rather than bounce back to normal.