Trust me, I'm a medical researcher

Scientists can no longer guarantee patients' privacy. They're looking for new ways to build trust. It's becoming more and more difficult to safeguard the privacy of patients who participate in scientific studies. Many patient samples today are banked, sequenced, and shared with potent...

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Bibliographic Details
Published inScience (American Association for the Advancement of Science) Vol. 347; no. 6221; pp. 501 - 503
Main Author Couzin-Frankel, Jennifer
Format Journal Article
LanguageEnglish
Published United States 30.01.2015
Subjects
Access to Information
Biomedical Research
Confidentiality
Deoxyribonucleic acid
DNA
Genetic Privacy
Humans
Information Dissemination
Informed Consent
Internet
Medical research
Patients
Privacy
Research Subjects
researchers
Trust
Trustworthiness
Websites
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Summary:Scientists can no longer guarantee patients' privacy. They're looking for new ways to build trust. It's becoming more and more difficult to safeguard the privacy of patients who participate in scientific studies. Many patient samples today are banked, sequenced, and shared with potentially thousands of researchers, and it's widely accepted that if you can read someone's DNA, you may be able to figure out who they are. That's why researchers are seeking new ways of gaining patients' trust and keeping them involved—for instance by giving them more control over how their samples are used or being more transparent about the studies that their data are used in. Some are looking at popular websites like Uber and Airbnb as they develop new ways of building trust between patients and researchers.
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ISSN:0036-8075
1095-9203
1095-9203
DOI:10.1126/science.347.6221.501