“Closing the Loop” Developing State-Level Data Sharing Interventions to Promote Optimum Outcomes Along the HIV Continuum of Care

• Published in: AIDS and behavior Vol. 23; no. Suppl 1; pp. 70 - 77
• Main Authors: Zamudio-Haas, Sophia, Koester, Kimberly A., Maiorana, Andres, Fuller, Shannon M., Steward, Wayne T., Gruber, DeAnn, Hauge, J. Christian, Parnell, Heather E., Quinlivan, Evelyn Byrd, Myers, Janet J.
• Format: Journal Article
• Language: English
• Published: New York Springer US 01.01.2019; Springer Nature B.V
• Subjects: Acquired immune deficiency syndrome; AIDS; Attrition; Clinics; Continuity of Patient Care - organization & administration; Data retrieval; Delivery of Health Care - organization & administration; Government agencies; Health care policy; Health Psychology; Health services; HIV; HIV Infections - drug therapy; HIV Infections - epidemiology; Human immunodeficiency virus; Humans; Infectious Diseases; Information Dissemination - methods; Information sharing; Interoperability; Intervention; Launching; Low income groups; Medicine; Medicine & Public Health; Original Paper; Public Health; Qualitative Research; Quality of care; State government; Data sharing interventions; State surveillance; HIV care continuum; Surveillance data; Implementation science
• ISSN: 1090-7165; 1573-3254
• DOI: 10.1007/s10461-018-2142-1

This manuscript describes the experiences of three state departments of health (SDoH) that successfully launched data sharing interventions involving surveillance and/or patient data collected in clinics to improve care outcomes among people living with HIV. We examined 58 key informant interviews, gathered at two time points, to describe the development and implementation of data sharing interventions. We identified three common themes across states’ experiences: creating standard practices, fostering interoperability, and negotiating the policy environment. Projects were successful when state teams adapted to changing circumstances and were committed to a consistent communication process. Once implemented, the interventions streamlined processes to promote linkage and retention in care among low-income populations living with HIV. Despite using routinely collected data, key informants emphasized the labor-intensive process to develop and sustain the interventions. Lessons learned from these three state experiences can help inform best practices for other SDoH that are considering launching similar interventions.