The Employment and Financial Effects on Families Raising Children With Special Health Care Needs: An Examination of the Evidence

• Published in: Journal of pediatric health care Vol. 26; no. 4; pp. 283 - 290
• Main Author: DeRigne, LeaAnne, PhD, MSW
• Format: Journal Article
• Language: English
• Published: United States Mosby, Inc 01.07.2012
• Subjects: Adolescent; Adult; Advanced Practice Nursing; caregivers; Child; Child Health Services - economics; Child Health Services - organization & administration; Child, Preschool; Children with special health care needs; Decision Making; Disabled Children - psychology; Disabled Children - statistics & numerical data; employment; Employment - economics; Employment - psychology; Employment - statistics & numerical data; Female; financial impact; Health Expenditures; Humans; Insurance Coverage; Insurance, Health; Male; Middle Aged; Nursing; Parents; Patient-Centered Care - economics; Patient-Centered Care - organization & administration; Pediatrics; Single-Parent Family - statistics & numerical data; Socioeconomic Factors; United States - epidemiology; United States; caregivers; employment; Children with special health care needs; financial impact
• ISSN: 0891-5245; 1532-656X
• DOI: 10.1016/j.pedhc.2010.12.006

Abstract Introduction Over 10 million children in the United States have special health care needs (U.S. Department of Health & Human Services, 2008). Parents struggle to afford needed health care and wrestle with the dual responsibilities of caregiving and employment. Researchers from a variety of disciplines, health care, and social science, in particular, are analyzing what variables affect a family’s ability to access needed health care while balancing work and caregiving. Methods A systematic literature review was conducted on the past 11 years of research that examined insurance status, insurance type, family out-of-pocket expenses, employment outcomes (reductions in hours or stopping work all together), and the role of receiving care in a medical home. Results It was found that private health insurance, more severe conditions, and specific diagnoses are related to increased expenses and employment changes. It was also found that receiving care in a medical home reduces both. Discussion It is vital that clinicians and policy makers move forward in expanding the concept of the medical home model as a means to improving the well-being of families raising children with special health care needs.