A Culturally Appropriate, Web-Based Technology for Anonymous Data Collection for Public Health Research in Culturally Diverse Populations

This case study describes how a Web-based technology helped a small nonprofit cancer education and research organization collect data anonymously from Native American cancer survivors from across the North American continent. The system described herein, known as the Privacy Broker System, is adapta...

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Bibliographic Details
Published inJournal of cases on information technology Vol. 9; no. 3; pp. 15 - 26
Main Authors Douma, Michael, Gamito, Eduard J
Format Journal Article
LanguageEnglish
Published Hershey IGI Global 01.07.2007
Subjects
Americans
Cancer
Data collection
Diagnosis
Education
Health aspects
Health insurance
Health promotion
Laws, regulations and rules
Privacy
Public health
Statistics
United States
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Summary:This case study describes how a Web-based technology helped a small nonprofit cancer education and research organization collect data anonymously from Native American cancer survivors from across the North American continent. The system described herein, known as the Privacy Broker System, is adaptable to different cultures and languages. The Privacy Broker System made cancer education and research, which was previously infeasible due to high costs and regulatory constraints, possible.
Bibliography:ObjectType-Article-2
SourceType-Scholarly Journals-1
ObjectType-Feature-1
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ISSN:1548-7717
1548-7725
DOI:10.4018/jcit.2007070102