The Rise of Citizen Science in Health and Biomedical Research

• Published in: American journal of bioethics Vol. 19; no. 8; pp. 3 - 14
• Main Authors: Wiggins, Andrea, Wilbanks, John
• Format: Journal Article
• Language: English
• Published: United States Taylor & Francis 03.08.2019
• Subjects: Biomedical Research - ethics; citizen science; Citizen Science - ethics; Community Participation; confidentiality and privacy; Data Collection; Electronic Data Processing; Humans; Informed Consent; participatory research; professional-patient relationship; Research Design; research ethics; Social Media; social science research; citizen science; participatory research; confidentiality and privacy; professional–patient relationship; research ethics; social science research

Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that bo...