The Rise of Citizen Science in Health and Biomedical Research

Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that bo...

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Bibliographic Details
Published inAmerican journal of bioethics Vol. 19; no. 8; pp. 3 - 14
Main Authors Wiggins, Andrea, Wilbanks, John
Format Journal Article
LanguageEnglish
Published United States Taylor & Francis 03.08.2019
Subjects
Biomedical Research - ethics
citizen science
Citizen Science - ethics
Community Participation
confidentiality and privacy
Data Collection
Electronic Data Processing
Humans
Informed Consent
participatory research
professional-patient relationship
Research Design
research ethics
Social Media
social science research
citizen science
participatory research
confidentiality and privacy
professional–patient relationship
research ethics
social science research
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Summary:Citizen science models of public participation in scientific research represent a growing area of opportunity for health and biomedical research, as well as new impetus for more collaborative forms of engagement in large-scale research. However, this also surfaces a variety of ethical issues that both fall outside of and build upon the standard human subjects concerns in bioethics. This article provides background on citizen science, examples of current projects in the field, and discussion of established and emerging ethical issues for citizen science in health and biomedical research.
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ISSN:1526-5161
1536-0075
1536-0075
DOI:10.1080/15265161.2019.1619859