“You need something like this to give you guidelines on what to do”: patients' and partners' use and perceptions of a self-directed coping skills training resource
Purpose This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together , for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. Methods This initial version of Coping-Together inclu...
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Published in | Supportive care in cancer Vol. 21; no. 12; pp. 3451 - 3460 |
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Main Authors | , , , , , , , , |
Format | Journal Article |
Language | English |
Published |
Berlin/Heidelberg
Springer Berlin Heidelberg
01.12.2013
Springer Springer Nature B.V |
Subjects | |
Online Access | Get full text |
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Abstract | Purpose
This study aims to report on the acceptability of a self-directed coping skills intervention, called
Coping-Together
, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design.
Methods
This initial version of
Coping-Together
included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content.
Results
Participants endorsed the self-directed format, and the focus of
Coping-Together
on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were “doable”; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you “pull through”, providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired.
Conclusions
Preliminary evaluation of
Coping-Together
supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping. |
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AbstractList | PURPOSEThis study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. METHODSThis initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. RESULTSParticipants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were "doable"; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you "pull through", providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. CONCLUSIONSPreliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping. This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were "doable"; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you "pull through", providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping.[PUBLICATION ABSTRACT] This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were "doable"; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you "pull through", providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping. Purpose This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. Methods This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. Results Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were "doable"; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you "pull through", providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. Conclusions Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping. Keywords Oncology * Cancer * Coping * Qualitative study * Self-directed intervention * Caregivers * Partners Purpose This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together , for patients affected by cancer and their partners, including the strengths and limitations of the intervention design. Methods This initial version of Coping-Together included a series of four booklets, which aimed to provide practical coping strategies for the day-to-day management of common physical and psychosocial challenges. Thirty semi-structured interviews were conducted with 27 patients and/or 14 partners. Interviews were audiorecorded, transcribed verbatim, and analyzed for content. Results Participants endorsed the self-directed format, and the focus of Coping-Together on practical information was a feature that set it apart from other resources. The majority of participants interviewed felt that the proposed coping strategies were “doable”; however, only half of the participants reported learning new coping skills after reading the booklets. Additional benefits of reading the booklets were increasing awareness of challenges to prepare for, giving hope that something can help you “pull through”, providing a sense of normality, connecting patients and partners to people and services, and complementing support received from health professionals. Despite the general acceptability of the intervention, some aspects of its design were criticized, including the workbook-like exercises, expectations about using the resource together, level of guidance provided, and amount of information included. In general, most participants felt that too much negative information was included, whereas more experiential information was desired. Conclusions Preliminary evaluation of Coping-Together supported its practical approach and highlighted improvements to enhance its contribution to patient and partner coping. |
Audience | Academic |
Author | Lambert, Sylvie D. Girgis, Afaf Candler, Hayley Chambers, Suzanne Turner, Jane Britton, Ben Lawsin, Catalina Kayser, Karen Regan, Tim |
Author_xml | – sequence: 1 givenname: Sylvie D. surname: Lambert fullname: Lambert, Sylvie D. email: sylvie.lambert@mcgill.ca organization: Ingram School of Nursing, Faculty of Medicine, McGill University – sequence: 2 givenname: Afaf surname: Girgis fullname: Girgis, Afaf organization: Translational Cancer Research Unit, Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, UNSW Medicine, The University of New South Wales – sequence: 3 givenname: Jane surname: Turner fullname: Turner, Jane organization: K Floor, Mental Health Centre, The University of Queensland – sequence: 4 givenname: Tim surname: Regan fullname: Regan, Tim organization: Centre for Translational Neuroscience and Mental Health (CTNMH), Calvary Mater Newcastle, The University of Newcastle – sequence: 5 givenname: Hayley surname: Candler fullname: Candler, Hayley organization: Translational Cancer Research Unit, Ingham Institute for Applied Medical Research, South Western Sydney Clinical School, UNSW Medicine, The University of New South Wales – sequence: 6 givenname: Ben surname: Britton fullname: Britton, Ben organization: Psycho-Oncology Service, Calvary Mater Newcastle – sequence: 7 givenname: Suzanne surname: Chambers fullname: Chambers, Suzanne organization: Griffith University – sequence: 8 givenname: Catalina surname: Lawsin fullname: Lawsin, Catalina organization: School of Psychology, The University of Sydney – sequence: 9 givenname: Karen surname: Kayser fullname: Kayser, Karen organization: Kent School of Social Work, University of Louisville |
BackLink | https://www.ncbi.nlm.nih.gov/pubmed/23955024$$D View this record in MEDLINE/PubMed |
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CitedBy_id | crossref_primary_10_1007_s11764_014_0359_1 crossref_primary_10_1111_ecc_12652 crossref_primary_10_1007_s13187_016_1038_x crossref_primary_10_3390_cancers15061754 crossref_primary_10_1159_000441251 crossref_primary_10_1186_s12913_018_3483_1 crossref_primary_10_1016_j_pedhc_2015_10_012 crossref_primary_10_1155_2022_4470366 crossref_primary_10_2196_jmir_8360 crossref_primary_10_1017_S147895152400035X crossref_primary_10_1016_j_pec_2017_06_039 crossref_primary_10_1007_s00520_015_2833_3 crossref_primary_10_1016_j_pec_2014_04_010 crossref_primary_10_1016_j_pec_2016_12_031 crossref_primary_10_3390_jcm9103284 crossref_primary_10_1002_pon_5566 crossref_primary_10_1371_journal_pone_0133837 crossref_primary_10_1111_ecc_13531 crossref_primary_10_1186_s40814_021_00791_6 |
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Snippet | Purpose
This study aims to report on the acceptability of a self-directed coping skills intervention, called
Coping-Together
, for patients affected by cancer... This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer and their... Purpose This study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer... PURPOSEThis study aims to report on the acceptability of a self-directed coping skills intervention, called Coping-Together, for patients affected by cancer... |
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SubjectTerms | Adaptation, Psychological Adjustment Cancer Cancer patients Domestic partners Female Guidelines as Topic Humans Intervention Male Medicine Medicine & Public Health Middle Aged Neoplasms - psychology Nursing Nursing Research Oncology Original Article Pain Medicine Patient Education as Topic - methods Patient Education as Topic - standards Patient Satisfaction Qualitative research Rehabilitation Medicine |
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Title | “You need something like this to give you guidelines on what to do”: patients' and partners' use and perceptions of a self-directed coping skills training resource |
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