Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living With Congenital Heart Defects

There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a...

Full description

Saved in:
Bibliographic Details
Published inQualitative health research Vol. 30; no. 1; pp. 119 - 132
Main Authors Svensson, Marie Kofod, Wahlberg, Ayo, Gislason, Gunnar H.
Format Journal Article
LanguageEnglish
Published Los Angeles, CA SAGE Publications 01.01.2020
SAGE PUBLICATIONS, INC
Subjects
Cardiovascular disease
Childrens health
Congenital diseases
Congenital heart disease
Ethnography
Health technology assessment
Qualitative research
Quality of life
Systematic review
chronic paradoxes
chronic illness
children’s health
meta-ethnography
qualitative research
families
systematic review
congenital heart defects
Online AccessGet full text

Cover

More Information
Summary:There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular kind of living from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research. Based on a meta-ethnographic analysis of 20 articles (identified through PubMed, EMBASE, EBSCOhost, PSYCHinfo, Scopus, and Web of Science from January 7 to 12, 2016), we argue that living with CHDs is characterized by chronic paradoxes arising out of the transitions, normalities, and futures that families have to navigate.
Bibliography:ObjectType-Article-2
SourceType-Scholarly Journals-1
ObjectType-Undefined-1
ObjectType-Feature-3
content type line 23
ISSN:1049-7323
1552-7557
DOI:10.1177/1049732319869909