Diversity and Inclusion in Unregulated mHealth Research: Addressing the Risks

mHealth devices and applications, with their wide accessibility and ease of use, have the potential to address persistent inequities in biomedical research participation. Yet, while mHealth technologies may facilitate more inclusive research participation, negative features of some unregulated use i...

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Bibliographic Details
Published inThe Journal of law, medicine & ethics Vol. 48; no. 1_suppl; pp. 115 - 121
Main Authors Callier, Shawneequa, Fullerton, Stephanie M.
Format Journal Article
LanguageEnglish
Published Los Angeles, CA SAGE Publications 01.03.2020
Cambridge University Press
Subjects
Algorithms
Biomedical Research - standards
Citizen participation
Data quality
Education policy
Enrollments
Ethnic Groups
Health Equity
Humans
Inclusion
Marketing
Medical research
Minority & ethnic groups
Multiculturalism & pluralism
Patient Selection - ethics
Privacy
Research Subjects
Smartphones
Social Inclusion
Social networks
Socioeconomic factors
Telemedicine
Telemedicine - standards
United States > US
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Summary:mHealth devices and applications, with their wide accessibility and ease of use, have the potential to address persistent inequities in biomedical research participation. Yet, while mHealth technologies may facilitate more inclusive research participation, negative features of some unregulated use in research — misleading enrollment practices, the promotion of secondary mHealth applications, discriminatory profiling, and poorer quality feedback due to dependencies on biased data and algorithms — may threaten the trust and engagement of underrepresented individuals and communities. To maximize the participation of currently disenfranchised groups, those involved in unregulated mHealth research must become aware of potential risks, adopt targeted education policies, audit algorithms for hidden biases, and engage citizen scientists and other community members to identify and forestall possible harms.
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ISSN:1073-1105
1748-720X
1748-720X
DOI:10.1177/1073110520917036