Exploring the Patient Experience with Noninvasive Ventilation: A Human-Centered Design Analysis to Inform Planning for Better Tolerance

This study brings a human-centered design (HCD) perspective to understanding the patient experience when using noninvasive ventilation (NIV) with the goal of creating better strategies to improve NIV comfort and tolerance. Using an HCD motivational approach, we created a semi-structured interview to...

Full description

Saved in:
Bibliographic Details
Published inChronic obstructive pulmonary diseases Vol. 9; no. 1; pp. 80 - 94
Main Authors McCormick, Jill L, Clark, Taylar A, Shea, Christopher M, Hess, Dean R, Lindenauer, Peter K, Hill, Nicholas S, Allen, Crystal E, Farmer, MaryJo S, Hughes, Ashley M, Steingrub, Jay S, Stefan, Mihaela S
Format Journal Article
LanguageEnglish
Published United States COPD Foundation Inc 01.01.2022
Subjects
Origianl Research
human-centered design
patient experience
copd
noninvasive ventilation
qualitative analysis
Online AccessGet full text

Cover

More Information
Summary:This study brings a human-centered design (HCD) perspective to understanding the patient experience when using noninvasive ventilation (NIV) with the goal of creating better strategies to improve NIV comfort and tolerance. Using an HCD motivational approach, we created a semi-structured interview to uncover the patients' journey while being treated with NIV. We interviewed 16 patients with chronic obstructive pulmonary disease (COPD) treated with NIV while hospitalized. Patients' experiences were captured in a stepwise narrative creating a journey map as a framework describing the overall experience and highlighting the key processes, tensions, and flows. We broke the journey into phases, steps, emotions, and themes to get a clear picture of the overall experience levers for patients. The following themes promoted NIV tolerance: trust in the providers, the favorable impression of the facility and staff, understanding why the mask was needed, how NIV works and how long it will be needed, immediate relief of the threatening suffocating sensation, familiarity with similar treatments, use of meditation and mindfulness, and the realization that treatment was useful. The following themes deterred NIV tolerance: physical and psychological discomfort with the mask, impaired control, feeling of loss of control, and being misinformed. Understanding the reality of patients with COPD treated with NIV will help refine strategies that can improve their experience and tolerance with NIV. Future research should test ideas with the best potential and generate prototypes and design iterations to be tested with patients.
Bibliography:ObjectType-Article-1
SourceType-Scholarly Journals-1
ObjectType-Feature-2
content type line 23
NSH is currently a consultant for Fisher Paykel, Respironics, BREAS, and has received grant/ research support from Fisher Paykel, Respironics, BREAS. AMH has no conflicts of interest, but her work on this manuscript does not reflect the U.S. government views or opinions. DRH is a consultant for Ventec Life Support, managing editor of Daedalus, and receives royalties from UpToDate, McGraw-Hill, and Jones and Barlett. JLM, TAC, CMS, PKL, CEA, MJSF, JSS, and MSS have no conflicts of interest.
Author contributions: MSS, JLM, TAC, and CMS participated in the conception and design, data acquisition, analysis, and interpretation. MSS and JLM wrote the first draft of the manuscript. All authors participated in the interpretation of the data and revision of the manuscript before publication.
We would also like to thank Nina Langone for designing the NIV Emotional Journey figure, and we would like to thank the clinical teams that introduced the study to the patients and provided us with the opportunity to interview the patients.
ISSN:2372-952X
2372-952X
DOI:10.15326/jcopdf.2021.0274