BIPOC experiences of (anti-)racist patient engagement in adolescent and young adult oncology research: an electronic Delphi study

• Published in: Future oncology (London, England) Vol. 20; no. 9; p. 547
• Main Authors: Cheung, Christabel K, Miller, Kimberly A, Goings, Trenette Clark, Thomas, Bria N, Lee, Haelim, Brandon, Rachel E, Katerere-Virima, Thuli, Helbling, Laura E, Causadias, José M, Roth, Michael E, Berthaud, Frantz M, Jones, Laundette P, Ross, Valentina A, Betz, Gail D, Simmons, Cole D, Carter, Jay, Davies, Simon J, Gilman, Megan L, Lewis, Mark A, Lopes, Gilberto, Tucker-Seeley, Reginald D
• Format: Journal Article
• Language: English
• Published: England Future Medicine Ltd 01.03.2024
• Subjects: AYA; BIPOC; patient engagement; real-world evidence; survivorship; young adult; survivorship; AYA; BIPOC; young adult; real-world evidence; patient engagement
• ISSN: 1479-6694; 1744-8301
• DOI: 10.2217/fon-2023-0771

To characterize Black, Indigenous and People of Color (BIPOC) adolescent and young adult (AYA) cancer patients' experiences of patient engagement in AYA oncology and derive best practices that are co-developed by BIPOC AYAs and oncology professionals. Following a previous call to action from AYA oncology professionals, a panel of experts composed exclusively of BIPOC AYA cancer patients (n = 32) participated in an electronic Delphi study. Emergent themes described BIPOC AYA cancer patients' direct experiences and consensus opinion on recommendations to advance antiracist patient engagement from BIPOC AYA cancer patients and oncology professionals. The findings reveal high-priority practices across all phases of research and are instructional for advancing health equity.