Factors that Affect Quality of Life from the Perspective of People with Dementia: A Metasynthesis
Objectives To comprehensively and systematically identify, appraise, and synthesize qualitative research findings on factors that affect quality of life from the perspective of people with dementia. Design Systematic review and metasynthesis of primary qualitative studies in published and gray liter...
Saved in:
Published in | Journal of the American Geriatrics Society (JAGS) Vol. 63; no. 1; pp. 24 - 38 |
---|---|
Main Authors | , , , |
Format | Journal Article |
Language | English |
Published |
United States
Blackwell Publishing Ltd
01.01.2015
Wiley Subscription Services, Inc |
Subjects | |
Online Access | Get full text |
Cover
Loading…
Summary: | Objectives
To comprehensively and systematically identify, appraise, and synthesize qualitative research findings on factors that affect quality of life from the perspective of people with dementia.
Design
Systematic review and metasynthesis of primary qualitative studies in published and gray literature that aimed to identify factors that influence quality of life from the perspective of people with dementia. Expert‐developed search strategies were applied in nine electronic databases. Reference lists of included articles and literature reviews identified during the search were reviewed. Structured inclusion criteria were applied to screen 5,625 titles and s to identify 11 qualitative studies published from 1975 to April 2012. Two independent reviewers appraised study quality.
Setting
Primary study recruitment sites included long‐term care and community‐based settings in the United Kingdom, the United States, Canada, the Netherlands, Ireland, Australia, and Japan.
Participants
A combined sample of 345 people with mild, moderate, and severe dementia.
Measurements
The primary studies used interview and focus group methods. Findings from primary studies were synthesized using techniques of taxonomic analysis, constant comparison, and importing concepts.
Results
Four factors and the experience of connectedness or disconnectedness within each factor influenced quality of life according to people with dementia. These factors, and the terms that represent connectedness and disconnectedness, were relationships (together vs alone), agency in life today (purposeful vs aimless), wellness perspective (well vs ill), and sense of place (located vs unsettled). Happiness and sadness were key outcomes of good and poor quality of life, respectively.
Conclusion
The four factors identified potentially modifiable areas to improve quality of life for people with dementia, even in the context of worsening cognitive function. |
---|---|
Bibliography: | ark:/67375/WNG-N921B4R1-W ArticleID:JGS13178 Knowledge Translation (KT) Canada Alberta Innovates Health Solutions Vanier Canada Graduate Scholarships Program University of Alberta Killam Trusts istex:55BBCE12140C42282E4E48596081711EBC39FF8B ObjectType-Article-2 SourceType-Scholarly Journals-1 ObjectType-Feature-1 ObjectType-Review-4 content type line 23 ObjectType-Undefined-3 |
ISSN: | 0002-8614 1532-5415 |
DOI: | 10.1111/jgs.13178 |