Development of a tool for early referral of children and adolescents with signs and symptoms suggestive of chronic arthropathy to pediatric rheumatology centers

• Published in: Arthritis and rheumatism Vol. 55; no. 3; pp. 373 - 377
• Main Authors: Len, Claudio Arnaldo, Terreri, Maria Teresa, Puccini, Rosana F., Wechsler, Rudolf, Silva, Edina Koga, Oliveira, Leda M., Barbosa, Cássia M. Passarelli, Pedroso, Glaura César, Hilário, Maria Odete E.
• Format: Journal Article
• Language: English
• Published: Hoboken Wiley Subscription Services, Inc., A Wiley Company 15.06.2006
• Subjects: Adolescent; Arthritis; Arthritis, Juvenile - diagnosis; Arthritis, Juvenile - physiopathology; Child; Child, Preschool; Early Diagnosis; Family Practice; Humans; Infant; Juvenile idiopathic arthritis; Juvenile rheumatoid arthritis; Mass Screening - methods; Pain; Pain - diagnosis; Pain - physiopathology; Pediatrics - methods; Predictive Value of Tests; Questionnaire; Referral and Consultation; Rheumatology; Surveys and Questionnaires
• ISSN: 0004-3591; 1529-0131
• DOI: 10.1002/art.21983

Objective To develop an easy, time‐efficient tool to identify children and adolescents with signs and symptoms suggestive of chronic arthropathies, and to evaluate its interobserver reproducibility and reliability. Methods The instrument used standardized techniques as required for the development of health‐related instruments, targeting parents of apparently healthy children and adolescents ages 1–16 years. A multidisciplinary team was involved in the design of the instrument. Results Each health professional generated 10–15 questions addressing musculoskeletal complaints that they considered to be the most relevant. A total of 60 questions were listed. During the reduction step, each health professional scored questions from 1 to 4 according to the question's relevance. The tool comprised 12 questions and was administered to the parents of 3 groups: patients with juvenile idiopathic arthritis (JIA; n = 48), children with diffuse musculoskeletal pain (n = 39), and a healthy control group (n = 42). The JIA group achieved the highest scores, followed by the diffuse musculoskeletal pain group and the control group. Nine (18.7%) of 48 patients with JIA and 2 (5.1%) of 39 children with musculoskeletal pain had a score of 5. The interobserver reproducibility was confirmed. All 12 questions were included in the final version of the instrument. We determined that children and adolescents with a score ≥5 should be referred for a rheumatologic evaluation (cluster analysis and logistic regression). Conclusion Our questionnaire seems to be a useful tool for the early detection of musculoskeletal problems in children that may need a referral for a rheumatologic evaluation.