Illness beliefs of adolescents with CFS and their parents: the perceived causes of illness and beliefs about recovery

• Published in: International journal of adolescent medicine and health Vol. 32; no. 4
• Main Authors: Loades, Maria E., Rimes, Katharine A., Lievesley, Kate, Ali, Sheila, Chalder, Trudie
• Format: Journal Article
• Language: English
• Published: Germany De Gruyter 17.08.2018; Walter de Gruyter GmbH
• Subjects: adolescents; CFS/ME; Chronic fatigue syndrome; Families & family life; illness beliefs; Neurosciences; parents; Parents & parenting; Psychology; Questionnaires; Recovery (Medical); Teenagers; chronic fatigue syndrome; CFS/ME; illness beliefs; adolescents; parents
• ISSN: 0334-0139; 2191-0278
• DOI: 10.1515/ijamh-2017-0197

The objective here was to explore beliefs about the causes of chronic fatigue syndrome (CFS) in a cohort of adolescents with CFS and their parents, and to explore the adolescent’s beliefs about recovery. Questionnaires were administered to a clinical cohort of adolescents (n = 104) and their parents (n = 102 mothers and 63 fathers), presenting to a specialist CFS unit. These included a question about the causes of their illness. Adolescents were also asked about the projected timeline of their recovery from CFS. The most commonly endorsed causes of CFS by adolescents and their parents were a virus and/or contextual factors and stress. Adolescents and their parents were in close agreement about the causes of CFS. Most adolescents said they did not know how long it would take them to recover from CFS. Informing adolescents about the prognosis for CFS is an important aspect of treatment.