To Report or Not to Report: The Ethical Complexity Facing Researchers When Responding to Disclosures of Harm or Illegal Activities During Fieldwork with Adults with Intellectual Disabilities

• Published in: Ethics and social welfare Vol. 17; no. 2; pp. 175 - 190
• Main Authors: Ribenfors, Francesca, Blood, Lauren
• Format: Journal Article
• Language: English
• Published: Abingdon Routledge 03.04.2023; Taylor & Francis Ltd
• Subjects: Autonomy; confidentiality; Decision making; Ethics; Field study; Fieldwork; harm; Intellectual disabilities; intellectual disability disclosure; Intellectually disabled people; Research ethics; Research ethics committees; Researchers
• ISSN: 1749-6535; 1749-6543
• DOI: 10.1080/17496535.2022.2149831

This article draws attention to the ethical complexity researchers may be confronted with during fieldwork should an adult participant with intellectual disabilities disclose that harm or an illegal activity is occurring or has occurred in the past. The need to gain ethical approval and the positioning of people with intellectual disabilities as vulnerable within ethics review procedures can result in the adoption of paternalistic approaches as researchers are encouraged to break confidentiality to report concerns to other professionals. Whilst this may fulfil a researcher's duty to ensure no harm occurs to participants, if it takes place against the participant's wishes it may also violate participant autonomy, reinforce unequal relations of power, and may unwittingly contribute to subsequent harm occurring. Whilst the article begins from our experience as two UK-based researchers working with people with intellectual disabilities, it draws on existing literature and guidelines to expose the ethical tensions which may be encountered. It is intended that the paper acts as a starting point for researchers wishing to reflect on their practice and ethical decision-making, whilst contributing to wider debates on the position of people with intellectual disabilities within society.