The functional health status of children with cerebral palsy during the COVID-19 pandemic stay-at-home period: a parental perspective

• Published in: Turkish journal of pediatrics Vol. 63; no. 2; pp. 223 - 236
• Main Authors: Bıyık, Kübra Seyhan, Özal, Cemil, Tunçdemir, Merve, Üneş, Sefa, Delioğlu, Kıvanç, Günel, Mintaze Kerem
• Format: Journal Article
• Language: English
• Published: Turkey Hacettepe University Faculty of Medicine 2021
• Subjects: Adolescent; Cerebral palsy; Cerebral Palsy - epidemiology; Child; Child, Preschool; Children & youth; Classification; Comorbidity; Coronaviruses; COVID-19; COVID-19 - epidemiology; Disability; Families & family life; Female; Focus groups; Health Status; Humans; Male; Pandemics; Parents & parenting; Parents - psychology; Participation; Pediatrics; Prospective Studies; Quality of Life; Questionnaires; Rehabilitation; SARS-CoV-2; Surveys and Questionnaires; Turkey - epidemiology; Validity; Turkey; COVID-19; cerebral palsy; pandemic; stay-at-home; ICF-CY; function
• ISSN: 0041-4301; 2791-6421
• DOI: 10.24953/turkjped.2021.02.006

Coronavirus disease 2019 (COVID-19) pandemic was effective all over the world. The stay-athome period was proposed to protect against the pandemic. The aim of this study was to investigate the effects of the COVID-19 pandemic stay-at-home period on body structures and functions, activity and participation levels, and environmental factors of children with cerebral palsy (CP) from the parental perspective in Turkey. A twenty-question survey, using the International Classification of Functioning, Disability and Health for Children and Youth set to understand the functional changes of children with CP during the stay-athome period, was sent to parents in this prospective study. Motor function levels of children were determined by the Gross Motor Function Classification System parent report. The structural equation model was used for statistical analysis. One hundred and three parents of children with CP participated. At least one of four children with CP had increased levels of anxiety (41.8%), and increased level of a sensation of pain (34%) and sleep problems (25.2%). More than half of the children had increased tonus (67%), decreased range of motion (60.2%), decreased physical activity level (55.3%), and decreased support level of rehabilitation services (82.6%). During the stayat- home period activity and participation levels and environmental factors of children explained the changes of body functions as 70% and 33% (RMSEA=0.077, p < 0.05). This study is the first study to examine the functional health of children with CP biopsychosocially during the COVID-19 stay-at-home period. According to the parents, the functional health of children with CP was affected at different levels during the COVID-19 pandemic. Body functions may also be affected positively if physical activity level, home program and environmental supports increase.