Family‐level coping in juvenile rheumatoid arthritis: Assessing the utility of a quantitative family interview

• Published in: Arthritis and rheumatism Vol. 12; no. 5; pp. 314 - 324
• Main Authors: Degotardi, Pamela J., Revenson, Tracey A., Ilowite, Norman T.
• Format: Journal Article
• Language: English
• Published: New York John Wiley & Sons, Inc 01.10.1999
• Subjects: Adaptation, Psychological; Adherence; Adolescent; Arthritis, Juvenile - psychology; Attitude to Health; Child; Family - psychology; Family coping; Humans; Interviews as Topic - methods; Juvenile rheumatoid arthritis; Methodology; Nursing Assessment - methods; Psychology, Adolescent; Psychosocial adaptation
• ISSN: 0004-3591; 0893-7524; 1529-0131
• DOI: 10.1002/1529-0131(199910)12:5<314::AID-ART2>3.0.CO;2-V

Objective To explore the viability of a quantitative family interview to describe family‐level coping strategies used to deal with juvenile rheumatoid arthritis (JRA)‐related stressors for early and late adolescents. Method A structured interview protocol with 30 adolescents with JRA and family members assessed ways JRA disrupts or changes family functioning. Emotional reactions, sequential phases of family response, and treatment adherence were discussed. Interviews were coded for family‐level coping. To assess adjustment, family members completed the Youth Self Report and the Family Environment Scale. The pediatric rheumatologist provided medical information. Results The family interview produced both quantitative and qualitative data. Families reported multiple JRA‐related stressors (mean 6.6). For many adolescents, treatment adherence was problematic. Families used all 3 types of coping strategies (appraisal‐, problem‐, and emotion‐focused) to varying degrees. Problem‐focused approaches were most commonly used and included seeking support (used by 73% of families), self‐reliance (70%), and family coordination (70%) for dealing with specific problems, and seeking information about JRA (67%). Emotion‐focused approaches, such as impulsive outbursts and diminished awareness of others' feelings, were associated with problematic adjustment. Few differences were found between the families of early and late adolescents. Conclusion The quantitative family interview has the potential to be a useful tool in documenting JRA‐related stressors, family‐level coping processes, and how family‐level coping is associated with treatment adherence and psychosocial adjustment.