Family functioning guidelines for the care of people with spina bifida

Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This art...

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Bibliographic Details
Published inJournal of pediatric rehabilitation medicine Vol. 13; no. 4; pp. 535 - 542
Main Authors Kritikos, Tessa K, Holmbeck, Grayson N
Format Journal Article
LanguageEnglish
Published Netherlands IOS Press 01.01.2020
Subjects
Spina Bifida Guideline
family functioning
Spina bifida
neural tube defects
myelomeningocele
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Summary:Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This article discusses the spina bifida family functioning guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida, and reviews evidence-based directions with the intention of helping individuals with spina bifida achieve optimal mental health throughout their lifespan. Guidelines address clinical questions pertaining to the impact of having a child with spina bifida on family functioning, resilience and vulnerability factors, parenting behaviors that may facilitate adaptive child outcomes, and appropriate interventions or approaches to promote family functioning. Gaps in the research and future directions are discussed.
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ISSN:1874-5393
1875-8894
DOI:10.3233/PRM-200720