Importance of an International Registry for and Collaborative Research on Esophageal Atresia

Esophageal atresia (EA) is a rare congenital defect. Data on EA prevalence, management, and long-term outcome are lacking because the available data come from small retrospective series from tertiary referral centers. An international multicenter registry would provide strong epidemiological data fr...

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Published inFrontiers in pediatrics Vol. 5; p. 81
Main Authors Gottrand, Frédéric, Ley, Delphine, Michaud, Laurent, Sfeir, Rony
Format Journal Article
LanguageEnglish
Published Switzerland Frontiers Media S.A 20.04.2017
Subjects
collaborative research
congenital defect
esophageal atresia
international registry
Pediatrics
population-based cohort
congenital defect
population-based cohort
esophageal atresia
collaborative research
international registry
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Summary:Esophageal atresia (EA) is a rare congenital defect. Data on EA prevalence, management, and long-term outcome are lacking because the available data come from small retrospective series from tertiary referral centers. An international multicenter registry would provide strong epidemiological data from large population-based cohorts on EA prevalence and incidence, treatment, long-term morbidity, and prognosis and would thus provide accurate data for evaluation of the current guidelines for EA management. The future challenge of the new international network on EA, which was created in 2013, is to promote the creation of a collaborative database and further studies.
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Specialty section: This article was submitted to Pediatric Gastroenterology, Hepatology and Nutrition, a section of the journal Frontiers in Pediatrics
Edited by: Usha Krishnan, Sydney Children’s Hospital, Australia
Reviewed by: Benjamin David Gold, Children’s Center for Digestive Healthcare LLC, USA; Susan Adams, Saskatoon City Hospital, Canada
ISSN:2296-2360
2296-2360
DOI:10.3389/fped.2017.00081