Impact of the caregiver burden on the effectiveness of a home-based palliative care program: A mediation analysis

• Published in: Palliative & supportive care Vol. 18; no. 3; pp. 332 - 338
• Main Authors: Pereira-Morales, Angela J., Valencia, Luis Enrique, Rojas, Luis
• Format: Journal Article
• Language: English
• Published: New York, USA Cambridge University Press 01.06.2020
• Subjects: Aged; Caregiver Burden - psychology; Caregiver Burden - therapy; Caregivers; Caregivers - psychology; Chronic illnesses; Female; Home Care Services - standards; Hospice care; Hospitals; Humans; Hypotheses; Male; Mediation Analysis; Middle Aged; Narcotics; Older people; Original Article; Palliative care; Palliative Care - methods; Palliative Care - standards; Patients; Quality of life; Quantitative psychology; Surveys and Questionnaires; Colombia; Burden; Terminally ill patients; Family caregiver; Outpatient palliative care
• ISSN: 1478-9515; 1478-9523
• DOI: 10.1017/S1478951519000749

The growing aging population and the high prevalence of several concomitant chronic diseases have contributed to the elevated rates of caregiver burden and suffering in patients. In turn, intending to relieve unnecessary pain in patients, there has been a rapid growth of outpatient palliative care programs. However, little has been studied about caregiver burden as a relevant factor potentially affecting the effectiveness of these programs. This study aimed to determine the extent of caregiver burden as a possible mediator on the effectiveness of a home-based palliative care program. Sixty-six palliative patients (56% women; mean age + SD = 71, 6 ± 17.7) and their caregivers were assessed with measures for physical, emotional, and psychological symptoms before and 1 month after the start of a home-based palliative care program. The association between caregiver burden and palliative outcomes was corroborated with a categorical regression model (p < 0.01). Caregiver burden was found to be a significant mediator in the relationship between outcome measures for palliative care at baseline and after 1 month of enrollment in the program. To our knowledge, this is the first study to assess the role of caregiver burden in the effectiveness of a home-based palliative care program. Although further work is required, the results indicate that a patient-focused intervention does not have the same beneficial effect if the caregiver burden is not addressed. Future home-based palliative care programs should focus on caregivers as well as patients, with particular attention to psychosocial intervention on caregivers.