Improving autism services in Hampshire: a lifespan approach

• Published in: Journal of integrated care (Brighton, England) Vol. 20; no. 5; pp. 296 - 307
• Main Authors: Dittrich, Rachel, Burgess, Linda
• Format: Journal Article
• Language: English
• Published: Brighton Emerald Group Publishing Limited 01.01.2012
• Subjects: Autism; Autistic children; Caregivers; Carers; Consultation; Continuing education; Education; Families & family life; Hampshire; Life course; Questionnaires; United Kingdom > UK; Case co-ordinator; Autism; Medical conditions; Health and social care; Partnership; Education; Health services; United Kingdom; Social care; User and carer involvement
• ISSN: 1476-9018; 2042-8685
• DOI: 10.1108/14769011211270747

Purpose - This article aims to report the findings of a consultation in which people with autism, their families, carers and professionals were asked about their experiences of living with autism and using services in Hampshire. The consultation took place in order to develop a strategy for people with autism within Hampshire.Design methodology approach - Hampshire Autism Voice and other stakeholders made it clear that it was important to include both adults and children to truly explore the needs of the local population who have autism. A questionnaire was devised and distributed to adults and children, parents and carers, and professionals.Findings - The responses to the consultation show that experiences in Hampshire are similar to those reported elsewhere in the literature. They reaffirm the importance of the Autism Act and the necessity to address the needs of older children and adults who have slipped though the diagnosis and eligibility nets, but also highlight how pathways in life can be better when autism is recognised and supported early on, how serious damage to people's lives may be prevented, and how a holistic approach that starts from early childhood and promotes awareness and understanding throughout services is desired amongst Hampshire residents affected by autism.Practical implications - The article advocates taking a strategic approach to improving services and facilities for people with autism across the whole life course, rather than focusing only on adults.Originality value - This was the first Hampshire autism-specific consultation to obtain the views of people with autism, their families, carers and professionals on their experiences of living with autism and the services provided in the county. Taking a life course approach to autism-related needs might, to date, be innovative within an English county council.