Parents, services and system: an exploration of power dynamics in future planning among parent carers for people with disability

Interactions between services and families have significant implications for families planning for the future needs of a family member who has a disability. However, little research interrogates the implications of these relationships for parent carers' agency in this planning. This qualitative...

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Bibliographic Details
Published inDisability & society Vol. 31; no. 8; pp. 1081 - 1097
Main Authors Petriwskyj, Andrea, Franz, Jill, Adkins, Barbara
Format Journal Article
LanguageEnglish
Published Abingdon Routledge 13.09.2016
Taylor & Francis Ltd
Subjects
Caregivers
Disability
Disorders
Families & family life
Grammatical aspect
Nonprofit organizations
Parent carers
Parents & parenting
People with disabilities
Planning
Power
Power structure
Private sector
Qualitative research
service providers
services
Social services
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Summary:Interactions between services and families have significant implications for families planning for the future needs of a family member who has a disability. However, little research interrogates the implications of these relationships for parent carers' agency in this planning. This qualitative study explored parents' experiences with public and not-for-profit services during planning. Findings revealed varied and fluid power dynamics, with attempts by carers to shift to more productive power relations, which carried risks and costs. In a context characterised by systemic constraints, these shifts create an iterative planning process, and highlight the need to support parents to use power productively.
ISSN:0968-7599
1360-0508
DOI:10.1080/09687599.2016.1234367