An assessment of advance relatives approach for brain death organ donation

• Published in: Nursing ethics Vol. 26; no. 2; pp. 553 - 563
• Main Authors: Michaut, Carine, Baumann, Antoine, Gregoire, Hélène, Laviale, Corinne, Audibert, Gérard, Ducrocq, Xavier
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01.03.2019; SAGE PUBLICATIONS, INC
• Subjects: Biological organs; Blood & organ donations; Brain Death; Brain research; Communication; Coordinators; Death & dying; Decision Making - ethics; Donors; Emergency services; Ethical dilemmas; Ethics; Families & family life; Family - psychology; France; Health care; Health education; Hospitals; Humans; Intensive care; Justification; Medical ethics; Medical personnel; Nurses; Nurses - psychology; Nursing; Patients; Physicians; Physicians - psychology; Professional ethics; Professional-Family Relations; Stroke units; Surveys and Questionnaires; Tissue and Organ Procurement - methods; Truth Disclosure; France; topic areas; professional ethics; intensive care; presumed consent; organ donation; clinical ethics; Areas of practice
• ISSN: 0969-7330; 1477-0989
• DOI: 10.1177/0969733017708331

Background: Advance announcement of forthcoming brain death has developed to enable intensivists and organ procurement organisation coordinators to more appropriately, and separately from each other, explain to relatives brain death and the subsequent post-mortem organ donation opportunity. Research aim: The aim was to assess how potentially involved healthcare professionals perceived ethical issues surrounding the strategy of advance approach. Research design: A multi-centre opinion survey using an anonymous self-administered questionnaire was conducted in the six-member hospitals of the publicly funded East of France regional organ and tissue procurement network called ‘Prélor’. Participants: The study population comprised 460 physicians and nurses in the Neurosurgical, Surgical and Medical Intensive Care Units, the Stroke Units and the Emergency Departments. Ethical considerations: The project was approved by the board of the Lorraine University Diploma in Medical Ethics and the Prélor Network administrators. Main findings: A slight majority of 53.5% of respondents had previously participated in an advance relatives approach: 83% of the physicians and 42% of the nurses. A majority of healthcare professionals (68%) think that the main justification for advance relatives approach is the comprehensive care of the dying patient and the research of his or her most likely opinion (74%). The misunderstanding of the related issues by relatives is an obstacle for 47% of healthcare professionals and 51% think that the answer given by the relatives regarding the most likely opinion of the person regarding post-mortem organ donation really corresponds to the person opinion in only 50% of the cases or less. Conclusion: Time given by advance approach should be employed to help and enable relatives to authentically bear the values and interests of the potential donor in the post-mortem organ donation discussion. Nurses’ attendance of advance relatives approach seems necessary to enable them to optimally support the families facing death and post-mortem organ donation issues.