Quality of life of caregivers supporting neurologically impaired patients who underwent surgery

• Published in: Pediatric investigation Vol. 64; no. 1; pp. e15138 - n/a
• Main Authors: Imagawa, Kentaro, Fukahori, Suguru, Hashizume, Naoki, Saikusa, Nobuyuki, Higashidate, Naruki, Ishii, Shinji, Masui, Daisuke, Sakamoto, Saki, Tsuruhisa, Shiori, Nakahara, Hirotomo, Tanaka, Yoshiaki, Yagi, Minoru, Yamashita, Yushiro
• Format: Journal Article
• Language: English
• Published: Australia John Wiley & Sons, Inc 01.01.2022; Blackwell Publishing Ltd
• Subjects: Aged; caregiver; Caregivers; Catheters; Child; Female; Gastroesophageal reflux; Hospitals; Humans; Life expectancy; neurologic impairment; Nurses; Nursing care; Ostomy; Patients; pediatric surgery; Pediatrics; Physical therapists; Physicians; Postoperative period; Quality of Life; Questionnaires; Surgeons; Surgery; Surveys; Surveys and Questionnaires; Teachers; neurologic impairment; pediatric surgery; quality of life; caregiver
• ISSN: 1328-8067; 2096-3726; 1442-200X; 2574-2272
• DOI: 10.1111/ped.15138

Background A questionnaire survey was conducted to clarify whether surgical treatments performed by a pediatric surgeon improve the quality of life (QOL) of caregivers (medical doctors, nurses, physical therapists, and nursery teachers) supporting neurologically impaired (NI) patients who work at specialized institutions. Methods The questionnaire survey was conducted with caregivers who cared for NI patients who underwent an operation at the Department of Pediatric Surgery, Kurume University Hospital. Quality‐of‐life related responses concerning the change of care after surgical procedures in NI patients were collected in addition to the background data related to caregivers and the surgical procedures performed for them. Degrees of difficulty in caring for NI patients and of the caregivers’ own QOL postoperatively were also compared. Results There were 192 valid responses. The majority of responses were from females and nurses aged in their 40s and 50s. The surgical procedure performed most often in the NI patients was gastrostomy. Of the respondents, 77% answered that the postoperative care became easier. The degrees of difficulty in caring for NI patients and the caregivers’ own QOL were significantly higher and lower, respectively, among physical therapists compared with caregivers in other occupations. Moreover, the QOL in respondents with factors related to a longstanding relationship with NI patients was significantly higher compared with the respondents without them. Conclusion This survey indicated that surgical procedures for NI patients might contribute to improved QOL for the caregiver by reducing the difficulty of caring for NI patients.