Chronic hand eczema in Europe: Patient experiences and perspectives (CHEPEP) in qualitative interviews
Background Chronic hand eczema (CHE) is a very common skin disease among the European population. It causes itch and pain and, in more severe cases, seriously impairs hand functioning at work and in private life. Objectives To explore perspectives of people with lived experience on CHE‐related probl...
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Published in | Journal of the European Academy of Dermatology and Venereology Vol. 37; no. 7; pp. 1396 - 1405 |
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Main Authors | , , , , , , , , , , , , , , , , , |
Format | Journal Article |
Language | English |
Published |
England
01.07.2023
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Subjects | |
Online Access | Get full text |
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Summary: | Background
Chronic hand eczema (CHE) is a very common skin disease among the European population. It causes itch and pain and, in more severe cases, seriously impairs hand functioning at work and in private life.
Objectives
To explore perspectives of people with lived experience on CHE‐related problems, wishes and goals.
Methods
Following a qualitative approach, we conducted topic‐guided interviews in five European countries and applied template analysis to identify recurrent themes among patients with CHE.
Results
We interviewed 60 patients in seven outpatient dermatological and occupational medicine clinics in Croatia, Denmark, Germany, the Netherlands and Spain. Five main themes were identified: (1) knowledge about the disease and its course, (2) preventive behaviour, (3) hand eczema therapy, (4) impact on everyday life and (5) attitudes towards CHE and healthcare. Participants did not feel well informed about CHE, especially about causes, triggers and treatment options. Preventive measures were experienced as more or less effective but also cumbersome. Experiences with therapy were diverse. Treatment satisfaction depended on the results and on the perceived support from the treatment teams. Participants found it important to be taken seriously, to receive practical advice, to try out additional treatments or examinations, find new hope and have occupational perspectives. They wished that others could better understand the physical and emotional burden of CHE. Patient support groups were not mentioned. Participants found it important to learn to take care of themselves and accept life with CHE.
Conclusions
Due to its annoying symptoms, high visibility and impaired functioning at work and in private life, CHE has a high emotional and social impact. Some people may require support to learn coping with CHE and its prevention. Patients wish for information about causes and triggers. They value physicians who listen to them and keep looking for solutions. |
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Bibliography: | C. Apfelbacher and A. Bauer are joint senior authors. F. Schiffers and H. Rönsch are joint first authors. ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 |
ISSN: | 0926-9959 1468-3083 1468-3083 |
DOI: | 10.1111/jdv.19055 |