The paradox of family support: concerns of tuberculosis-infected HIV patients about involving family and friends in their treatment

• Published in: AIDS patient care and STDs Vol. 26; no. 11; p. 674
• Main Authors: Ushie, Boniface Ayanbekongshie, Jegede, Ayodele Samuel
• Format: Journal Article
• Language: English
• Published: United States 01.11.2012
• Subjects: Acquired Immunodeficiency Syndrome - drug therapy; Acquired Immunodeficiency Syndrome - epidemiology; Acquired Immunodeficiency Syndrome - psychology; Anti-HIV Agents - administration & dosage; Attitude to Health; Employment; Family - psychology; Female; Focus Groups; Health Behavior; Health Promotion; Health Services Accessibility; HIV Seropositivity - drug therapy; HIV Seropositivity - epidemiology; HIV Seropositivity - psychology; Humans; Male; Medication Adherence - psychology; Medication Adherence - statistics & numerical data; Nigeria - epidemiology; Social Stigma; Social Support; Socioeconomic Factors; Surveys and Questionnaires; Tuberculosis - drug therapy; Tuberculosis - epidemiology; Tuberculosis - psychology; Nigeria
• ISSN: 1557-7449
• DOI: 10.1089/apc.2011.0304

Despite the widely documented evidence that family support improves adherence to HIV treatment, some studies have reported no benefit or even a negative association between family support and adherence. This study reexamined the role of family support in treatment adherence to find out the circumstances under which family support for HIV and tuberculosis coinfected patients promotes or hinders treatment adherence in Cross River State, Nigeria. We conducted eight focus group discussions (FGDs) and four case histories with coinfected patients. In addition, 21 in-depth interviews (IDIs) were conducted with: 8 family members, 6 friends, and 7 care providers. Data were analyzed in a thematic format with the aid of NVIVO software. Overall, family support promotes adherence in coinfected patients. Family support may, however, have a negative effect on adherence when the recipient perceives that the support is given with ulterior motives (e.g., gossiping about them and becoming indebted to the support givers) and when the recipient is the primary breadwinner and feels that this role is being undermined. Family support is useful as a tool for scaling up adherence but the usefulness is context-specific and mediated by the patient's subjective interpretation of the support givers' motives.