Balancing Autonomy and Security Over Geotracking Patients with Alzheimer's Using a Personalized Geotracking System with Social Support Network

Systems for geotracking Alzheimer's Disease patients with dementia are reported to raise ethical issues and concerns. Studies stated possible loss of freedom and autonomy for patients, along with violations of their privacy, which may lead to loss of prestige/dignity. In this study, a personali...

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Published inProcedia computer science Vol. 10; pp. 1064 - 1072
Main Authors Yüce, Yılmaz Kemal, Gülkesen, Kemal Hakan, Barcın, Ebru Nur
Format Journal Article
LanguageEnglish
Published Elsevier B.V 2012
Subjects
Alzheimer's
ethics
geofencing
geotracking
social support network
social support network
geotracking
ethics
geofencing
Alzheimer's
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Summary:Systems for geotracking Alzheimer's Disease patients with dementia are reported to raise ethical issues and concerns. Studies stated possible loss of freedom and autonomy for patients, along with violations of their privacy, which may lead to loss of prestige/dignity. In this study, a personalized geotracking system that aims to balance patient security and need for privacy and autonomy is proposed. In addition, the system tries to form and organize a social support network among family caregivers to help each other locating patients during wandering episodes. The system introduces a personalized, four-level temporal geofence based tracking, warning and notification protocol that incorporates a safety check mechanism operating over Global System for Mobile Communications network. It is under development using Java and will be evaluated by using both qualitative and quantitative methods. In this paper, personalization, system architecture and social support network operation principles are presented.
ISSN:1877-0509
1877-0509
DOI:10.1016/j.procs.2012.06.150