A Belmont Report for Health Data

• Published in: The New England journal of medicine Vol. 380; no. 16; pp. 1493 - 1495
• Main Authors: Parasidis, Efthimios, Pike, Elizabeth, McGraw, Deven
• Format: Journal Article
• Language: English
• Published: United States Massachusetts Medical Society 18.04.2019
• Subjects: Accountability; Biomedical Research - ethics; Confidentiality - ethics; Confidentiality - legislation & jurisprudence; Consent; Data analysis; Data Anonymization - legislation & jurisprudence; Data collection; Datasets as Topic - ethics; Ethics; Ethics, Research; Europe; General Data Protection Regulation; Health Insurance Portability & Accountability Act 1996-US; Health Insurance Portability and Accountability Act; Human Experimentation - ethics; Humans; Insurance premiums; Medical ethics; Personal Autonomy; Privacy; Public health; Review boards; Surveillance; United States; United States; Europe; United States > US; California

Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about data use call for stakeholders to promulgate ethical guidance for health data.