A Belmont Report for Health Data

Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about data use call for stakeholders to promulgate ethical guidance for health data.

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Bibliographic Details
Published inThe New England journal of medicine Vol. 380; no. 16; pp. 1493 - 1495
Main Authors Parasidis, Efthimios, Pike, Elizabeth, McGraw, Deven
Format Journal Article
LanguageEnglish
Published United States Massachusetts Medical Society 18.04.2019
Subjects
Accountability
Biomedical Research - ethics
Confidentiality - ethics
Confidentiality - legislation & jurisprudence
Consent
Data analysis
Data Anonymization - legislation & jurisprudence
Data collection
Datasets as Topic - ethics
Ethics
Ethics, Research
Europe
General Data Protection Regulation
Health Insurance Portability & Accountability Act 1996-US
Health Insurance Portability and Accountability Act
Human Experimentation - ethics
Humans
Insurance premiums
Medical ethics
Personal Autonomy
Privacy
Public health
Review boards
Surveillance
United States
United States
Europe
United States > US
California
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Summary:Just as indignities common in human-subjects research led to the articulation of ethical principles in the Belmont Report 40 years ago, contemporary concerns about data use call for stakeholders to promulgate ethical guidance for health data.
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ISSN:0028-4793
1533-4406
1533-4406
DOI:10.1056/NEJMp1816373