Outlining the therapeutic itineraries of children with disabilities in the professional health care subsystem

• Published in: Revista Brasileira de Enfermagem Vol. 75; no. 3; pp. e20210169 - 8
• Main Authors: Farias, Andreia Chaves, Maia, Evanira Rodrigues, Costa, Milena Silva, Moreira, Maria Rosilene Cândido, Oliveira, Joseph Dimas de, Pinto, Antonio Germane Alves
• Format: Journal Article
• Language: English
• Published: Brazil Associação Brasileira de Enfermagem 2022
• Subjects: Access to Health Services; Child; Child Care; Children & youth; Children With Disabilities; Data collection; Delivery of Health Care; Disabled Children; Families & family life; Family; Health care access; Health Facilities; Health services; Health Services Needs and Demands; Humans; Interviews; Pediatric Nursing; People with disabilities; Professional ethics; Professionals; Qualitative Research; Rehabilitation; Software
• ISSN: 0034-7167; 1984-0446
• DOI: 10.1590/0034-7167-2021-0169

to identify the outlining of therapeutic itineraries of families of children with disabilities in the professional health care subsystem. qualitative research carried out in two specialized services in the state of Ceará, with 41 family members interviewed using the life path technique and reports submitted to descending hierarchical classification and similitude analysis, with the help of the IRaMuTeQ software and the theoretical framework of health care systems. the classes described the families' itineraries in five paths, related to faith, support structures, medical behaviors, professionals, and health services. The professional subsystem stood out as deficient in outlining the therapeutic itinerary for access to health care for children with disabilities, without promoting integration between services in the Care Network. the families' therapeutic itineraries showed homogeneous discourse with themes related to the care of professionals and spiritual aspects.