Opinions and attitudes of research ethics committees in Arab countries in the Middle East and North African region toward ethical issues involving biobank research

• Published in: Research ethics review Vol. 20; no. 1; pp. 1 - 18
• Main Authors: Mohammed, Zeinab, Abdelgawad, Fatma, Ahram, Mamoun, Ibrahim, Maha E, Elgamri, Alya, Gamel, Ehsan, Adarmouch, Latifa, Rhazi, Karima El, Abd ElHafeez, Samar, Silverman, Henry
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 01.01.2024; SAGE Publishing
• Subjects: biospecimens; broad consent; research ethics committees; Biobank; data sharing; community engagement
• ISSN: 1747-0161; 2047-6094
• DOI: 10.1177/17470161231185510

Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the findings from a survey that sought to investigate the opinions and attitudes of REC members from four Arab countries in the Middle East and North Africa (Egypt, Morocco, Sudan, and Jordan) toward these ethical issues. Our findings suggest that efforts are required to better familiarize REC members with the requirements for ethical biobank research. Additionally, we recommend that further research is undertaken with REC members regarding the main items that should be present in the Material Transfer Agreements /Data Transfer Agreements in their corresponding countries and the type of consent that should be used in genomic research.