Fibromyalgia in social media: content and quality of the information analysis of videos on the YouTube platform

• Published in: Informatics for health & social care Vol. 47; no. 3; pp. 305 - 316
• Main Authors: Macedo, Caik C., Figueiredo, Pedro H. S., Gonçalves, Nelcilaine R. B., Afonso, Clarita A., Martins, Rosana M., Santos, Jousielle M., Gaiad, Thaís P., Sañudo, Borja, Oliveira, Vinicius C., Mendonça, Vanessa A., Lacerda, Ana Cristina R.
• Format: Journal Article
• Language: English
• Published: Taylor & Francis 03.07.2022
• Subjects: content analysis; Health education; videos; youtube
• ISSN: 1753-8157; 1753-8165; 1753-8165
• DOI: 10.1080/17538157.2021.1990934

To evaluate the fibromyalgia (FM) content in YouTube videos and verify if American College of Rheumatology (ACR) guidelines are being met. The videos were searched with the keyword "Fibromyalgia." Two independent researchers evaluated and coded specific characteristics of the videos. The popularity of the videos, the presentation properties, and content related to FM according to the ACR criteria were analyzed. Of the 200 videos included, the majority were presented by health professionals, 61.5%. Most videos covered more than one subject, 38.5%. The videos presented by health professionals were the most viewed. Following the ACR guidelines, 38% defined FM, 24% described the etiology, 19.5% described the diagnostic criteria and 52% presented recommended management strategies. The results indicate that users mainly watch videos published by health professionals. Most of the published videos do not follow the information recommended by the ACR guidelines. Therefore, videos should be interpreted with caution, not being the most appropriate resource for health education for patients with FM. Most of the videos published on YouTube about FM do not meet the ACR guidelines for FM.