Distributed Analytics on Sensitive Medical Data: The Personal Health Train

• Published in: Data intelligence Vol. 2; no. 1-2; pp. 96 - 107
• Main Authors: Beyan, Oya, Choudhury, Ananya, van Soest, Johan, Kohlbacher, Oliver, Zimmermann, Lukas, Stenzhorn, Holger, Karim, Md. Rezaul, Dumontier, Michel, Decker, Stefan, da Silva Santos, Luiz Olavo Bonino, Dekker, Andre
• Format: Journal Article
• Language: English
• Published: One Rogers Street, Cambridge, MA 02142-1209, USA MIT Press 01.01.2020; MIT Press Journals, The
• Subjects: Data analysis; Data reuse; Distributed analytics; Ethics and privacy; FAIR; Health care; Health data; Mathematical analysis; Personal health; Principles
• ISSN: 2641-435X; 2641-435X
• DOI: 10.1162/dint_a_00032

In recent years, as newer technologies have evolved around the healthcare ecosystem, more and more data have been generated. Advanced analytics could power the data collected from numerous sources, both from healthcare institutions, or generated by individuals themselves via apps and devices, and lead to innovations in treatment and diagnosis of diseases; improve the care given to the patient; and empower citizens to participate in the decision-making process regarding their own health and well-being. However, the sensitive nature of the health data prohibits healthcare organizations from sharing the data. The Personal Health Train (PHT) is a novel approach, aiming to establish a distributed data analytics infrastructure enabling the (re)use of distributed healthcare data, while data owners stay in control of their own data. The main principle of the PHT is that data remain in their original location, and analytical tasks visit data sources and execute the tasks. The PHT provides a distributed, flexible approach to use data in a network of participants, incorporating the FAIR principles. It facilitates the responsible use of sensitive and/or personal data by adopting international principles and regulations. This paper presents the concepts and main components of the PHT and demonstrates how it complies with FAIR principles.