Factors influencing health promoting activities of mothers caring for ventilator-assisted children

• Published in: Journal of pediatric nursing Vol. 19; no. 4; pp. 276 - 287
• Main Authors: Kuster, Patricia A, Badr, Lina K, Chang, Betty L, Wuerker, Anne K, Benjamin, A.E
• Format: Journal Article
• Language: English
• Published: United States Elsevier Inc 01.08.2004
• Subjects: Adaptation, Psychological; Adolescent; Adult; Attitude to Health; Child; Child, Preschool; Chronic Disease; Female; Health Promotion; Humans; Infant; Life Style; Middle Aged; Mother-Child Relations; Mothers - education; Mothers - psychology; Nursing; Nursing Evaluation Research; Regression Analysis; Respiration, Artificial - psychology; Risk Factors; Severity of Illness Index; Social Support; Surveys and Questionnaires; Time Factors; United States; United States
• ISSN: 0882-5963; 1532-8449
• DOI: 10.1016/j.pedn.2004.05.009

The extensive care a ventilator-assisted child (VAC) requires when cared for in the home can impact the mother’s ability to participate in health promotion activities. The purpose of this study was to examine health promotion activities and the relationships among functional status of the child, impact of the illness on the family, coping, social support, and health promotion activities of mothers who care for ventilator-assisted children at home. Thirty-eight primary female caregivers, mostly mothers, participated in the study and completed the Personal Lifestyle Questionnaire (PLQ), measures of child’s functional status, impact of the illness on the family, coping, social support, and demographic data. Findings revealed that the mothers scored low on the nutrition, exercise, relaxation, and general health promotion subscales of the PLQ. Functional status of the child and coping were positively correlated with participation in health promotion activities, whereas impact of the child’s illness on the family was inversely related to health promotion of the mothers. Regression analysis revealed that functional status of the child and coping were significant predictors of mothers’ participation in health promotion activities. The high demands associated with caring for a VAC with poor functioning can be a significant risk factor for not participating in health promotion activities. Nurses need to help mothers with coping and finding resources to help mediate the stress related to caring for their child, thereby helping the mothers to maintain their own health.