Top Ten Tips Palliative Care Clinicians Should Know About Navigating the Needs of Adults with Intellectual Disabilities

As many people with intellectual disabilities (ID) live longer, the need for access to quality palliative care (PC) rises. People with ID realize significant barriers and inequities in accessing health care and PC. The need for integrated disability and PC services with extensive collaboration is gr...

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Bibliographic Details
Published inJournal of palliative medicine Vol. 25; no. 12; p. 1857
Main Authors Moore, Caitlyn M, Pan, Cynthia X, Roseman, Karin, Stephens, Mary M, Bien-Aime, Casey, Morgan, Ann C, Ross, Wendy, Castillo, Matthew C, Palathra, Brigit C, Jones, Christopher A, Ailey, Sarah, Tuffrey-Wijne, Irene, Smeltzer, Suzanne C, Tobias, Jane
Format Journal Article
LanguageEnglish
Published United States 01.12.2022
Subjects
Humans
Palliative Care
end of life
intellectual disabilities
palliative care
disability
interdisciplinary team
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Summary:As many people with intellectual disabilities (ID) live longer, the need for access to quality palliative care (PC) rises. People with ID realize significant barriers and inequities in accessing health care and PC. The need for integrated disability and PC services with extensive collaboration is great. The following tips are for PC clinicians caring for people with ID, their families, caregivers, and the community. While patient-centered care is difficult to distill into "tips," this article, written by an interdisciplinary team of PC and ID specialists, offers resources and references to improve the care provided to people with ID and serious illnesses.
ISSN:1557-7740
DOI:10.1089/jpm.2022.0384