Perception and psychosocial burden of people with epilepsy (PWE): Experience from Indonesia

This study aimed to investigate the perception of people with epilepsy (PWE) and their psychosocial burden. This research used a qualitative method by using in-depth semi-structured interview technique to 7 PWE in Makassar. There are five themes arise from this study, which are the perception of epi...

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Bibliographic Details
Published inEnfermeria clinica Vol. 30 Suppl 2; p. 622
Main Authors Nurjannah, Elna, Nurdin, Nurhaya, Andriani, Kadar, Kusrini
Format Journal Article
LanguageEnglish
Published Spain 01.03.2020
Subjects
Epilepsy
Humans
Indonesia
Perception
Indonesia
People with epilepsy (PWE)
Coping strategies
Psychosocial burden
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Summary:This study aimed to investigate the perception of people with epilepsy (PWE) and their psychosocial burden. This research used a qualitative method by using in-depth semi-structured interview technique to 7 PWE in Makassar. There are five themes arise from this study, which are the perception of epilepsy in people with epilepsy, the perceived psychosocial burden on people with epilepsy, coping strategies used by people with epilepsy, the expectations of people with epilepsy in the environment and the reality that occurs in people with epilepsy in Makassar. The results indicate that there are still many negative perceptions arise from people's minds due to the lack of knowledge related to epilepsy. As a result, PWE often are excluded and shunned by the community.
ISSN:1579-2013
DOI:10.1016/j.enfcli.2019.07.175