Delirium in advanced cancer leading to distress in patients and family caregivers

• Published in: Journal of palliative care Vol. 25; no. 3; pp. 164 - 171
• Main Authors: Cohen, Marlene Z, Pace, Ellen A, Kaur, Guddi, Bruera, Eduardo
• Format: Journal Article
• Language: English
• Published: United States SAGE PUBLICATIONS, INC 2009
• Subjects: Adult; Aged; Aged, 80 and over; Cancer; Caregivers; Caregivers - psychology; Delirium - etiology; Delirium - psychology; Emotional disorders; Family - psychology; Female; Humans; Interviews as Topic; Male; Medical research; Middle Aged; Neoplasms - complications; Palliative care; Patients - psychology; Canada
• ISSN: 0825-8597; 2369-5293
• DOI: 10.1177/082585970902500303

Information is limited about the experiences of delirium among patients with advanced cancer and their caregivers, which makes designing interventions to relieve delirium-related distress difficult. To better understand the experience and thus permit the design of effective interventions, we collected and analyzed data from patients with advanced cancer who had recovered from delirium and their family caregivers. Phenomenological interviews were conducted separately with 37 caregivers and 34 patients. One investigator reviewed verbatim transcripts of the audio-taped interviews to identify themes, which the research team confirmed. Most patients and all caregivers had vivid memories of the experience; their descriptions were consistent. Most also attributed the confusion to pain medication. Caregivers had concerns about how best to help patients, patients' imminent deaths, and their own well-being. The main finding that delirium leads to distress for both patients and caregivers indicates the importance of recognizing, treating, and, if possible, preventing delirium in this population. Concerns about pain medications also indicate the need to educate patients and caregivers about symptom management. Caregivers also need emotional support.