Leveraging state cancer registries to measure and improve the quality of cancer care: a potential strategy for California and beyond

• Published in: JNCI : Journal of the National Cancer Institute Vol. 107; no. 5; p. djv047
• Main Authors: Hiatt, Robert A, Tai, Caroline G, Blayney, Douglas W, Deapen, Dennis, Hogarth, Michael, Kizer, Kenneth W, Lipscomb, Joseph, Malin, Jennifer, Phillips, Stephen K, Santa, John, Schrag, Deborah
• Format: Journal Article
• Language: English
• Published: United States 11.03.2015
• Subjects: California; Electronic Health Records; Humans; Insurance Claim Reporting; Medical Record Linkage; Neoplasms; Quality Assurance, Health Care; Quality Improvement; Registries - standards; California
• ISSN: 0027-8874; 1460-2105
• DOI: 10.1093/jnci/djv047

Despite recent increased attention to healthcare performance and the burden of disease from cancer, measures of quality of cancer care are not readily available. In 2013, the California HealthCare Foundation convened an expert workgroup to explore the potential for leveraging data in the California Cancer Registry (CCR), one of the world's largest population-based cancer registries, for measuring and improving the quality of cancer care. The workgroup assessed current registry operations, the value to be gained by linking CCR data with health insurance claims or encounter data and clinical data contained in health system electronic health records, and potential barriers to these linkages. The workgroup concluded that: 1) The CCR mandate should be expanded to include use of its data for quality of cancer care measurement and public reporting; and 2) a system should be developed to support linkage of registry data with both claims data and provider electronic health record data.