Family needs after brain injury: A cross cultural study

• Published in: NeuroRehabilitation (Reading, Mass.) Vol. 36; no. 2; pp. 203 - 214
• Main Authors: Norup, Anne, Perrin, Paul B., Cuberos-Urbano, Gustavo, Anke, Audny, Andelic, Nada, Doyle, Sarah T., Cristina Quijano, Maria, Caracuel, Alfonso, Mar, Dulce, Guadalupe Espinosa Jove, Irma, Carlos Arango-Lasprilla, Juan
• Format: Journal Article
• Language: English
• Published: London, England SAGE Publications 17.06.2015
• Subjects: Adult; Brain Injuries - psychology; Brain Injuries - rehabilitation; Caregivers - psychology; Colombia; Cross-Cultural Comparison; Denmark; Emotions; Family - psychology; Female; Health Services Needs and Demand; Hispanic Americans; Humans; Male; Mexico; Middle Aged; Needs Assessment; Norway; Residence Characteristics; Social Support; Spain; Surveys and Questionnaires; Young Adult; Denmark; Colombia; Mexico; Norway; Spain; caregivers; global regions; Traumatic brain injury; family needs; cultural differences
• ISSN: 1053-8135; 1878-6448
• DOI: 10.3233/NRE-151208

Abstract OBJECTIVE: The objective of this study was to explore differences by country in the importance of family needs after traumatic brain injury (TBI), as well as differences in met/unmet needs. METHOD: Two hundred and seventy-one family members of an individual with TBI in Mexico, Colombia, Spain, Denmark, and Norway completed the Family Needs Questionnaire. RESULTS: Eight of the ten needs rated as most important globally were from the Health Information subscale. Importance ratings on the Health Information, Professional Support, and Involvement With Care subscales were similar across countries, but Mexican family members rated Instrumental Support needs as less important than Colombian, Spanish, and Danish family members, and also rated their Community Support needs as less important than Danish and Spanish family members. Mexican family member’s rated emotional support needs as less important than Colombian, Spanish, and Danish family members. Globally, the needs rated as most often met were from the Health Information subscale, and the most unmet needs were from the Emotional Support subscale. CONCLUSION: Despite some similarities across countries several differences were identified, and these can help professionals to provide more culturally appropriate rehabilitation services for family members in order to improve informal care for TBI.