Choice in the Context of Dementia: Emerging Issues for Health Care Practice in Aging Societies

• Published in: The Hastings Center report Vol. 54 Suppl 1; p. S2
• Main Authors: Berlinger, Nancy, Largent, Emily A, Buchbinder, Mara, Solomon, Mildred Z
• Format: Journal Article
• Language: English
• Published: United States 01.01.2024
• Subjects: hastening death in end-of-life care; dementia caregivers; dementia; ethics; advance care planning; aging societies; palliative care
• ISSN: 1552-146X
• DOI: 10.1002/hast.1549

This introduction to the special report "Facing Dementia: Clarifying End-of-Life Choices, Supporting Better Lives" explains why focused attention to dementia is needed in bioethics and in health care practice in a range of settings. It explains how this strongly age-associated condition shapes individual lives over years, revealing inequities in how dementia care is financed. The introduction explains the structure of the report, which consists of five essays, a consolidated set of recommendations from these essays, bibliographies, and other resources. The first essay is a landscape review written for health care professionals to support discussion, debate, and deliberation within professional societies and networks concerning a patient's voluntary choice to hasten their own death in the context of a dementia diagnosis. The landscape review is followed by three essays that suggest how several familiar concepts within care for persons with serious illness should be rethought to better support advance care planning, physician-patient conversations, and access to community-based palliative care and hospice when a person is facing dementia. The final essay presents a bold, practical argument for supporting better lives for people facing dementia, and for dementia caregivers, through primary care, the usual source of care for people with dementia.